Resources

A legacy of empowerment

Erin Popovich logo

Erin Popovich knew the burdens faced by someone with ILD. She wanted to relieve those burdens and empower others like her. Today, patients and caregivers have resources and support for a more hopeful journey. Erin’s legacy lives on through the Erin Popovich Endowment. 


Treatment image
Erin Popovich logo

A legacy of empowerment

Erin Popovich knew the burdens faced by someone with ILD. She wanted to relieve those burdens and empower others like her. Today, patients and caregivers have resources and support for a more hopeful journey. Erin’s legacy lives on through the Erin Popovich Endowment. 


Resources to help manage life with ILD

There are plenty of resources for people managing life with ILD. If you’re struggling, don’t be afraid to ask for help. You may find that some of the best information comes from others living with ILD.

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Your Care Team

You’ll need providers who are trained to care for people with ILD

DETAILS ON CHOOSING TEAM »

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ILD Patient Guide

Download the new ILD Patient Guide for updated ILD patient information

DOWNLOAD NOW »

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SEARCH Library

Search the ILD Library for information about specific conditions

SEARCH LIBRARY »

Additional resources

  • Support Groups

    Local and online support groups can be a great help as you navigate life with ILD. Support groups have many benefits:

    • Talking can help reduce stress and anxiety about your condition.
    • Communication can ease the feeling of loneliness that often comes with a new diagnosis.
    • It can be good to be around people who know what you’re going through.

    Find a support group:

    • Ask your healthcare team if a local support group exists.
    • Join a support group, or start your own.
    • Check with area medical centers and hospital systems for resources.
    • Support is also available online.
  • Pulmonary Fibrosis Resources

    Support Groups

    The Pulmonary Fibrosis Foundation (PFF) has local, virtual, and telephone-based support groups for people living with lung disease and their caregivers. The groups talk about worries or problems in living with lung disease. The goal is to help people live a better life. Other support groups include:

    • PF Warriors: PF Warriors is an international online support group. It was formed by volunteers for people with pulmonary fibrosis (PF), ILD, and other lung diseases. Every month, there are in-person and online meetings.
    • PF Warriors on Facebook: The PF Warriors Facebook page shares websites and news articles relevant to PF, ILD, and other lung diseases. It also provides up-to-date information on PF Warriors and highlights current projects.

    Information from Medication Manufacturers

    You can find information from companies that make FDA-approved medications used to treat idiopathic pulmonary fibrosis (IPF). These websites may help you understand more about ILD and related medications:

    CHEST Foundation Resources