Information and Resources
You have the right to clear, trusted answers about ILD and your specific diagnosis. Sometimes, your location or first language can affect your ability to access such information. Other times, you might feel uncomfortable speaking up if you don’t understand a piece of info or want more details.
We understand how vital fact-based decision making is when it comes to your diagnosis, treatment, and daily life. That’s why we want you to know that you have a right to:
- Easily understandable information from your care team
- Printed educational materials
- An interpreter at your physician, pharmacy, and physical therapist as well as translated printed materials, if needed
- The accompaniment of a friend, family member, or caregiver at appointments and consultations
Never hesitate to ask your care providers for more information, additional resources, or a referral for another opinion.
Living with Interstitial Lung Disease Patient Education Guide
This 52-page guide explores every facet of ILD that you may encounter, from diagnosis and treatment to support and myths. With the most up-to-date information available, this guide will help you and your loved ones feel confident when making decisions about your diagnosis.
Visit our resource centers
Up-to-date information, research, and local support
Additional resources about Interstitial Lung Disease and related conditions
Identify Other Conditions
Relationships of Conditions in ILD
Navigating Pulmonary Fibrosis
Patients living with ILD are steadily deprived of their ability to breathe, and with that, they are deprived of everything else, including their hope for the future. The Erin Popovich Endowment ensures they’re not also deprived of the support they need to face their diagnosis with courage and strength. Here, we’ll provide the tools patients need to live a life full of the people and places they love.
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The Erin Popovich Endowment, established with the CHEST Foundation, is changing what it means to live with ILD. The CHEST Foundation is the philanthropic arm of the American College of Chest Physicians.
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